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Centre for Interventional Paediatric Psychopharmacology and Rare Diseases (CIPPRD)

How our service can help you

The Centre of Interventional Paediatric Psychopharmacology and Rare Diseases (CIPPRD) provides whole-person medicine and integrated mental and physical health care for children and young people with complex, severe, and treatment-resistant co-occurring neuropsychiatric disorders and medical conditions including rare diseases.

We offer a service for children and young people aged 2-18 years with treatment resistant neuropsychiatric disorders. We also see children and young people aged 2 to 25 years old with neuropsychiatric symptoms arising as a result of rare diseases such as Rett syndrome.

We provide a service for children and young people with a variety of neuropsychiatric disorders, in the context of neuroinflammatory, metabolic, genetic or neurodegenerative disorders and acquired brain injury; psychotropic-induced side-effects and neuropsychiatric aspects in children with terminal illness.

We have specific programs for those with emotional behavioural autonomic dysregulation (EBAD), Rett syndrome, Mucopolysaccharidoses, and other rare disorders.

  • Service Borough Covers: National (Child and Adolescent services) Treatment type: Outpatient

  • Contact the service

    Site Location: Maudsley Hospital Email: cipp@slam.nhs.uk Phone Number: 020 3228 3900
  • Disabled Access:
    • Wheelchair accessible building
    • Ground floor therapy rooms
    • Accessible toilets on all levels
    • Lift access to the 1stfloor.
  • Address: Michael Rutter Centre
    Maudsley Hospital
    De Crespigny Park,
    London,
    SE5 8AZ
  • Business Hours/Visiting Hours: Monday to Friday, 9am to 5pm

    • Other essential information

  • Conditions: Attention deficit hyperactivity disorder (ADHD), Autism, Bipolar disorder, Childhood degenerative disorders, Depression, Dissociative disorders, Learning disabilities, Neuropsychiatry , Obsessive compulsive disorder (OCD), Persistent physical symptoms, Psychosis

Interventions

Our approach is to provide ongoing assessment and review leading to multi-modal personalised care based on a bio-psycho-social approach, which includes:

  • Comprehensive assessment with the child and young person (depending on abilities) and their parents or carers to clarify diagnostic status, in particular neurodevelopmental and neuropsychiatric disorders
  • Information is collated by using the HealthTrackerTM, a health monitoring platform that allows us to get online questionnaires completed by multiple sources (for example, child, parent, schools, other agencies); and audio and video conferencing methods in addition to face-to-face assessment
  • We use sensor-based wearable technology for psychophysiological monitoring
  • We routinely risk stratify all our patients and offer increased clinical contact based on patient complexity and risk
  • Information gathered using HealthTrackerTM and the biometric data assist in personalised treatment decision-making, and biometric guided pharmacological and non-pharmacological interventions.
  • Pharmacological treatment (in liaison with other medical departments across the UK as required)
  • Consultant clinical psychologist-led modified individual and family interventions (where appropriate); advice and support for parents or carers, social care and education colleagues are provided when necessary
  • The consultant clinical psychologists provide clinical consultation and advice to local child and adolescent mental health services (CAMHS) colleagues as needed
  • We work using a shared care strategy with local CAMHS, paediatrics and GPs



CIPPRD/CPMRS approach is to provide personalised care, based on a bio-psycho-social approach, and includes:
 

  • Comprehensive assessment with the child and young person (depending on abilities) and their parents or carers to clarify diagnostic status, in particular neurodevelopmental and neuropsychiatric disorders
  • Ongoing collation of information is collated by using the HealthTrackerTM, a health monitoring platform that allows us to get online questionnaires completed by multiple sources (for example, child, parent, schools, other agencies); and audio and video conferencing methods in addition to face-to-face assessment
  • We use sensor-based wearable technology for psychophysiological monitoring
  • Information gathered using HealthTrackerTM and the biometric data assist in personalised treatment decision-making, and biometric guided pharmacological and non-pharmacological interventions
  • We provide pharmacological and psychological treatment and liaise with other medical departments across the UK as required
  • Advice and support to parents, carers, CAMHS, education colleagues on non-pharmacological treatments
  • We work using a shared care strategy with local CAMHS, paediatrics and GPs


Treatment during the Covid-19 period has been adapted so that parents and carers, and patients (where able), can complete online HealthTrackerTM questionnaires longitudinally so that automatic alerts are raised if there is a significant change in mental or physical health risk, including Covid-19 risks (Figure below):
patient centred care in CIPPRD and CPRMS


The diagram below shows what we do after assessment:

patient centred care and shared decision making in CIPPRD

CIPPRD / CPMRS process of providing treatment includes:

  • Assessment by multidisciplinary team led by consultants in neuropsychiatry and clinical psychology, with a goal of diagnostic clarification, care plan review and intensive risk management
  • We provide psychopharmacological interventions (including experimental medications) alongside psychological interventions
  • Our consultant clinical psychologists sometimes provide modified cognitive behavioural therapy (CBT), biometric guided interventions, group interventions, and advice on behavioural programmes where appropriate
  • We use sensor-based psychophysiological monitoring and HealthTrackerTM-based patient-centred outcome monitoring and risk-stratification to provide care
  • We provide regular virtual monitoring through online, audio or video conferencing, or face-to-face input to fine-tune pharmacological and psychological interventions to optimise treatment response.
  • We routinely liaise with local services, GPs, medical specialists (paediatrics, cardiology, neurology, haematology, endocrinology, genetics), social care and education
  • We provide an adult transition package with local services as needed
  • We provide holistic care for Rett syndrome and also conduct clinical trials with novel treatments and use sensor-based psychophysiological monitoring, patient-centred outcome monitoring using HealthTrackerTM as part of routine care
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